COMMITTED AND PASSIONATE. SUPPORT RARE DISEASE AND EQUALITY
I’ll update as things expand and get started. Currently I’m setting up the importing and online sales company and getting the final detrails of the CDKL5 Foundation sorted for the beginnings or regular fundraising and donating to research.
2020 THE YEAR OF CORONA?
Hi all. What a year so far. I predicted a great year and as Corona hit it appreared that i may be wrong. But i…
SIMONE IS COMING BACK!
After a long hard couple of years of tough lessons, I am finally coming back. But much improved, better version of me! So, part of…
WHAT DO I REPRESENT?
I’ll update as things expand and get started. Currently I’m setting up the importing and online sales company and getting the final detrails of the CDKL5 Foundation sorted for the beginnings or regular fundraising and donating to research.
MY STORY
I’ve always been driven to experience as much of life as I can, as soon as I can. I have always felt this way and this drive has led to a huge amount of experience in many diverse areas. This experience has all come into use in helping my special complex and rare kids be all they can and get the best access to everything they need which has helped open the doors to all special kids getting better access, opportunities and equality.
ADVOCACY
- women’s rights in childbirth
- equal access for all disabilities
- right to life
- medicinal cannabis
- real food tube feeding
ENJOYING LIFE
Throughout my life I have come to enjoy many activities. Line dancing, Bollywood dancing, body building, health and fitness, reading, holidays, culture, languages, sky diving, Army adventures etc.
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